“Our celiac community drives everything we do here at Beyond Celiac to accelerate research towards a treatment and cure for celiac disease,” said Alice Bast, CEO of Beyond Celiac. “When we create dialogue between celiac disease patients and the researchers and medical professionals in the field, we are connecting science with the realities of the patient experience, powering scientific progress and keeping our community informed.”
The first Town Hall will be live on Wednesday, March 24 at noon EST. The conversation will be recorded and available to view afterward at beyondceliac.org. For more information and the Zoom link, visit www.beyondceliac.org/town-halls
Beyond Celiac director of scientific affairs Amy Ratner will lead the discussion with Lisa Fahey, MD, clinical director of the Celiac Center at The Children’s Hospital of Philadelphia (CHOP) and Betsy Turner, PhD, pediatric psychologist and psychosocial manager in the CHOP Division of Gastroenterology, Hepatology and Nutrition.
The group will explore several key topics of interest for parents of children with celiac disease, including:
Main issues that psychologists at the Celiac Center see in children with celiac disease
Top concerns after diagnosis
Ways to quickly respond to gluten exposure
How to transition celiac disease management from parent to child as the child gets older
Future Town Hall dates will include conversations with leading organizations such as the National Minority Quality Forum (NMQF), a research and educational organization dedicated to ensuring that high-risk racial and ethnic populations and communities receive optimal health care. Beyond Celiac and NMQF announced they will be working together over the next several years to examine and address health inequities in the diagnosis and treatment of celiac disease.
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